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Grab your Guy or Doll and join us from a safe social distance via Facebook Live on Saturday, April 25th. Bev and Bob will deliver a very special message to mark our 11th annual, and hopefully only, virtual event. You will be able to send them a real-time message. It's the next best thing to being together. Auction items will be able to be picked up in the Fishers area beginning Tuesday, April 28th through Saturday, May 2nd. If you need an item shipped, an additional fee may apply. See item description for details.

  • Bev and Bob Hartig

    Their Story

    Bev and Bob Hartig

    Their Story

    Since we last saw many of you in 2019, the disease has made a devastating, progressive turn for the worse in Bev's life. These are the grim facts and this is the ugly, yet very real face of HD: At a recent doctor's visit with the physician who has followed Bev from the start, she asked Bev to make decisions while she still can regarding a feeding tube. Bob is leaving it up to Bev, and at this point she doesn't want one. However, statistics show that without a feeding tube, patients with HD run a higher risk of aspiration and choking. Currently she can chew and swallow well, so that's hopeful and encouraging! Her balance is very poor and she can't walk alone or she will fall. When in public, she and her assistants use a wheelchair, but when she's out with Bob, he walks her arm-in-arm. She has had multiple falls and has needed 12 staples in her head in the last six months. Bev's anxiety levels were beyond control recently, so much so that she could not focus, sit still, or even concentrate to watch a TV show. Her medication was adjusted to manage this and has slowed her brain down to keep anxiety at bay. Thankfully, she has gained back six pounds in six months, and still loves to eat cookies and pie! It is increasingly difficult for her to hold a conversation. She now receives weekly speech therapy for the life skill of saying, "My name is Bev. I have HD." She also receives occupational therapy to give her physical exercise and safe movement in her day.

  • Bev and Bob Hartig

    Continue Their Story here

    Bev and Bob Hartig

    Continue Their Story here

    How they are coping: There is full-time help for Bev with three shifts of assistants during the day. The morning team helps with getting her showered and dressed for the day. The mid-day team takes her to appointments and lunches with friends, and the evening team assists Bev with dinner and the needs of the family. With Bev, life goes on: Bev and Bob have weekly Saturday "date night" dinners and on Sundays they attend church and go out for brunch. Bob tells us the hardest part: "She knows what's going on and is fully aware of everything. She doesn’t want the help, but she knows she has to take it. In all reality, she just wants to be herself, but she can't, she is trapped in this body of hers." The good news: Bob promised Bev she will stay at home and will not be put in a care facility in the later stages of HD. When asked how she's doing, Bev always, always smiles, hugs and says, "I'm great!" Even in the darkest of days, she still chooses joy!

Questions? Contact Us Today!

Questions? Contact Us Today!

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Check out the progress on where we are for donations

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Check out the progress on where we are for donations

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Facebook Live
Join us live on our Facebook page April 25th at 7:30pm

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Facebook Live
Join us live on our Facebook page April 25th at 7:30pm

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